2 Comments

Lung Leavin’ Day

 

cancer survivor, Heather Von St. James

Heather and Lily

There’s a lot more to this picture of Heather Von St. James and her daughter Lily than you see—battle scars, miracles, loss, courage, humor and triumph. Well, the courage and humor shows in their eyes.

Their journey began in 2005. Shortly after Heather and her husband Cameron welcomed Lily into the world, Heather was diagnosed with mesothelioma. Doctors told the new mother that she had only fifteen months to live.

If you’ve never heard of mesothelioma, you’re not alone. Those most familiar with it are the ones diagnosed with it. Mesothelioma is a rare and deadly form of cancer that attacks the lining of the body cavity called the mesothelium. And the pretty, delicate gossamer in the photo below is the killer responsible for it.

Asbestos Fibers

Asbestos.

Asbestos is the only known cause of mesothelioma, a rare cancer that lies dormant in the body for 20-50 years after exposure. Mesothelioma treatments are available, but for many people a cure is not possible. Yet nine years after her diagnosis, Heather is counted among the survivors. Her recovery from the disease is clinically unique because of her young age at the time of her diagnosis. Typically, patients are older and even with treatment, have a 6 to 9 month median survival rate. Fighting the battle wasn’t easy for Heather, Cameron and Lily. It was won with great sacrifice. Namely, one of Heather’s lungs.

Heather writes:

I was a candidate for a surgery called an extrapleural pneumonectomy. It’s a huge surgery that includes the removal of the affected lung, pleura (the lining around the lung where the cancer was), the left half of my diaphragm and the lining of my heart; both my diaphragm and heart lining were replaced with surgical gortex. My sixth rib was also removed so the surgeon would have better access to the chest cavity. This is no routine surgery, and it was made worse by the fact that I was a new mom. My baby would be turning six months old two days after my surgery.

Choosing to laugh instead of cry, Heather, Cameron and Heather’s sister knew that a sense of humor was crucial to alleviate fear and successfully defeat the cancer. When Heather learned her surgery was scheduled for Groundhog’s Day, she nicknamed her tumor Punxsutawney Phil. As the radical surgery approached, Heather and her family decided it would be a day to celebrate. After all, it was going to save her life. Hence, February 2nd was christened Lung Leavin’ Day (the day her lung left). The celebration has grown every year since 2005, and recently Heather, Cameron and Lily started using the occasion as a fundraiser for mesothelioma cancer.

Roses and fireworks

 

Today, September 26, is the official Mesothelioma Awareness Day. Join Heather Von St. James in her crusade against this deadly disease  by sharing information about it with others.

For more information:

Mesothelioma Cancer Alliance

Heather Von St. James Blog

Asbestos Facts and Statistics 

Advertisements

2 comments on “Lung Leavin’ Day

  1. Good for you for sharing their story and spreading the news!

    Also, I like the look for your blog. Am I just slow on the uptake, or have you changed it?

    Like

  2. It’s a great story to share. And yes I changed the look. Glad you like it.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: